Monday, June 21

“Living” – that being the operative word – With “Disability”

I have been living with a chronic potentially life-threatening illness for many years now. It's been enlightening and not just because of what I've learned about myself. I've found it interesting to observe people's reactions to physical disability, in my case that means visible life-support (oxygen). Sometimes we actually become invisible - especially if our hair is graying - and sometimes we are treated with kindness (always appreciated) or with an inappropriate solicitude (not appreciated). You don't need to shout at me. You don't need to read forms to me. My lung capacity is an issue, not my hearing, my mental acuity or my ability to take care of myself and negotiate the world. Honestly, chronic exhaustion and needing help lifting, carrying or shopping are inconveniences, irritating and often frustrating, but not earth shattering. We learn to live with and work around such challenges. We adapt.

On the other hand, since my move into disabled-senior housing, I'm often distressed to see that people with emotional and psychological disabilities - disabilities that are only evident because of inappropriate behaviors - are often relentlessly treated with disrespect, even scorn. It's as though inner demons are a moral indictment and yet the complications of psychological and emotional disability seem to me to be more intractable and far-ranging than physical constraints. Physical disabilities in and of themselves don't keep us from loving, finding joy and hope in life or having dreams.

Part of the problem with the word 'disabilities' is that it immediately suggests an inability to see or hear or walk or do other things that many of us take for granted. But what of people who can't feel? Or talk about their feelings? Or manage their feelings in constructive ways? What of people who aren't able to form close and strong relationships? And people who cannot find fulfillment in their lives, or those who have lost hope, who live in disappointment and bitterness and find in life no joy, no love? These, it seems to me, are the real disabilities.”  Fred Rogers, The World According to Mister Rogers: Important Things to Remember

Ditto that. Thank you, Mr. Rogers.

© 2016, words and photograph, Jamie Dedes (The Poet by Day), All rights reserved


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